My son Dylan was born on August 2009 with Down Syndrome. Before his birth we had no idea. Fast Forward to 48 hours post-delivery, and my ugly-crying had finally stopped. I went into mama bear mode. Seriously, I needed to get over myself. It was not time for a pity party! This kid is here and he needs his mommy to get her shit together.
Here’s my advice: if you have a family member or friend that has just delivered a baby with Down Syndrome, DO NOT come in saying you are so sorry! Do NOT buy an outdated book on how to raise a kid with DS from circa 1975, and hand it to the parents. Yes…that happened! It literally took my breath away and I nearly passed out.
Do not say “You have basically been struck by lightning!” Those words came out of the mouth of the neonatologist. I mean, are you kidding me right now? It just goes to show some can be educated, but are still ignorant as f***.
My doctor painted a picture of doom and gloom. I understand that they need to prepare you for what health concerns are prominent. But don’t tell me my son will be a burden to his sister some day when mommy and daddy are gone. Thanks but no thanks, DR. JACKASS! Can you hear my blood boiling?
Do not refer to the baby as a Down’s baby. That implies all babies with DS are the same. Dylan was born with Down Syndrome. Dylan is not Down Syndrome. Dylan is unique and precious, when he isn’t running away from me in Target. Stinker!!
What should you do and say? Say, “Congratulations!” You take a gift for the baby and donuts for mommy.
Now, if mom is visibly upset, hand her a tissue, hug her and tell her you are there to help.
Many babies with Down Syndrome have heart surgery soon after birth. We were lucky that Dylan did not have to have surgery. He did have a hole in his heart, but it closed on its own. Take that DR. JACKASS!
Everything he predicted, Dylan has done the exact opposite. We are extremely blessed. Dylan is amazing. I cannot imagine our little family without him, exactly as he is. Dylan is #changingthefaceofbeauty!!
October is Down Syndrome Awareness month. If you are lucky to know someone that was born with DS, celebrate them.